One year ago today, my life changed. On June 1st, 2017, I was diagnosed with an incurable disease. This incurable disease is called Retinitis Pigmentosa and it’s making me go blind. Today, I have 15% vision remaining. The diagnosis answered a lot of the questions I had as to why I was seeing so […]
A few weeks ago, my wife sent me the below video. She stumbled upon after seeing a picture of Robert Herjavec, from the TV Show “Shark Tank,” with Jim Platzer, a man who has 5% of his vision remaining due to Retinitis Pigmentosa. After watching this video I was in awe. Not only […]
Well, with some time passed and life at an all time high of being crazy, here are what we’ve learned in the past two months. eSight As I mentioned in my post about our eSight Trial , we opted to do the In-Home trial of the glasses. It took a bit longer than expected to receive […]
For as long as I can remember, I’ve held a profound hatred for Daylight Savings time. I despised going to work in the dark and coming out in the dark, I loathed the limited amount of hours to actually be outside in the sun. Before June 1st, 2017, I thought it wasn’t just me, but […]
Accepting that my vision is detonating is hard. Seeing it affect my family, loved ones and me as a person is hard. Taking the steps to accept this unacceptable reality is seemingly impossible but if there is a will, there is a way… As I deal with the realities of our future, I have been […]
Having poor vision is a challenge. Whether it’s a simple task like taking the trash out to the curb at night or reading the mail, some of the easiest and most mundane tasks are becoming increasingly difficult with my vision fading. I know that right now, there is no cure for Retinitis Pigmentosa, however there […]
With the time passing and our life continuing it’s change, we find ourselves tackling massive mountains wearing sandals. We aren’t prepared for these battles, for these acceptances or for the anger that it can bring forth. I’ve always found value in advice from others that have been through a similar situation. They’ve been down a […]
With the New Year upon us, the quandary of what it holds stands in front of us. 2017 sure had it’s up s and downs and through it all, my family is closer, stronger and more connected than ever before. 2017 held my diagnosis, declaration of being Legally Blind and the exceptionally difficult adjustments, […]
Well, 6 months following my formal diagnosis of Retinitis Pigmentosa, I visited my Retinal Specialist for my bi-annual visit. After an excruciating morning of tests, poking, lights and dots, my doctor informed Angela and I that I am now Legally Blind. Yay! Oh, wait. This sucks! As of December 2017, I only have 15 degrees […]
As ordain as it sounds, today I made a step forward today. A step that I’ve been working on for about 3 months. I ordered my first ID cane. It’s simple but monumental for me. I hated every second of it and throughly wish that I NEVER had to even know what this is but […]