One year ago today, my life changed.
On June 1st, 2017, I was diagnosed with an incurable disease. This incurable disease is called Retinitis Pigmentosa and it’s making me go blind. Today, I have 15% vision remaining.
The diagnosis answered a lot of the questions I had as to why I was seeing so little. Although having a “name” for the issues we were facing was somewhat relieving, the hard hitting words of Retinitis Pigmentosa, coupled with the reality that I was going blind has been tough.
Over the past year, a lot has changed, a lot has happened and my vision has continued to decrease.
In the past year, I’ve been depressed, felt like a burden, and have battled with my own self worth.
In the past year,, my family and I have had to adjust how we live our life. We’ve missed out on events and special moments. We’ve changed how we do just about everything.
In the past year, my wife has stepped up to the plate. She is the only driver in our household and continues to amaze me with her selflessness and willing to help. She is one amazing woman and I am lucky to have her as my wife.
In the past year, we decided to have another child. Lyla Drew Ogg is set to arrive any day and is an absolute light in our lives already.
In the past year, our 4 year old, Peyton Marie Ogg, knows more about my vision and assists me everyday. Whether it’s helping me navigate a crowded or dark place or helping me find something that has dropped, she is compassionate, aware and amazing.
In the past year, i’ve worried greatly over my children’s future and how my lack of vision will affect them.
In the past year, we have seen a lot of doctors. I have tried to participate in clinical trials, only to be declined.
In the past year, a lot of things in my past has made more sense. Why I do things the way I do and why some things are so damn hard.
In the past year, I’ve been angry, really angry at what is happening to my vision.
In the past year, I’ve gone from being VERY independent to VERY dependent.
In the past year, we have made friends that also suffer from low vision or blindness. They have become inspiration and motivation for me.
In the past year, I purchased a white cane. I still don’t want to use it but I have to begin.
In the past year, I’ve been scared, lost and terrified.
Through all of the days and moments in the past year, I am proud of where my family and I are today. I am happy that I have the support that I do and people in my life that truly care for me. I am grateful for the people that have helped me and continue to support me.
In the past year, I’ve wondered if I will see my daughters get married. If I will be able to see them grow into who they were meant to be. The future is daunting when you aren’t sure if you’ll actually see it.
In the past year, i’ve had a lot of rough days.
Through those rough days come the golden days. The days where I own my vision and the future. The days where I feel confident and able to tackle the challenges and tribulations that lay ahead.
Without challenge, we don’t grow. This past year has been a year of growth for us all and the people in my life that are involved. It’s been hard, yet absolutely wonderful at the same time.
Today I share with you that I’m going blind and it sucks. However, it will not define me. It won’t take more away from me. Today I share with the world that I am legally blind and it’s getting worse. Today I am going to start carrying my cane with me, not because I want to, but because I need to.
Today we step out of the dark and accept the reality that our family is going to be a bit different. We are going to do things a bit different and just about everything is going to take us a bit longer.
Andy, I am so proud to know you! You are so strong and brave. You have an amazing family.
Our son was also faced with life changing health issues as well last year when he had a brain bleed stroke at age 37.
He goes through the same ups and downs.
Life can change in an instant.
You have so much positive going on. Keep fighting and pushing forward. Those precious babies need you! I look forward to your updates. Always in our thoughts and prayers.
You are amazing Andy Ogg. I am in awe of you honesty and strength
Well put brother. You and your family are incredible, and I’m happy to know and you be a small part of this journey!
God bless you. Through your wisdom, you have more vision than you can possibly know. You are an inspiration, you will do well. You are a gifted writer, and wonderful husband, father and son. ( I am friends with your mom and have cherished the pictures of Peyton) My best to you.
Thank you for sharing, Andy. The tears are rolling as I imagine the hardest days for you and your family. The love and light you guys emanate is so beautiful to experience. I wish you all some comfort and easy days.